*Backdated Post*
*Some content copied from Facebook Posts*
On March 27 I went in to have all of the pre-tests done for acceptance into the trial and to sign my consent forms. The pre-testing was pretty simple: blood draw, 3 EKGs run 5 mins apart, and a bone marrow biopsy. Ok, so the biopsy isn't exactly simple especially considering I had just had one done less than 2 weeks ago, but it was a necessary evil.
While waiting for the trial to begin we got back the results from the March 27 biopsy and it showed that my blasts had gone up to 26% (from just under 7%) and I was freaking out because we still had another 2 weeks after that biopsy of no treatment so who knows how out of control the leukemia could get during that time.
Finally day 1 of the trial came. It was a long day where I had to have multiple blood draws and EKGs, and we ended up leaving our house at 6am and not getting home until 8pm. Below is what I wrote about on Facebook that day.
Apr 10:
Clinical Trial Day 1 today.
Had to leave home at 6 to get here for my 7am blood draw.
Saw the PA for my doctor and the study coordinator then headed over to the research lab.
Before I could take my pills I had to have an EKG run 3 times, 5 minutes apart and have another sample of blood drawn.
Then I had to take 7 pills. Somehow cohort 5 is 700mg. Not sure how the math works out on that one, but ok. I'll have to take these 7 pills every day in addition to the 13 pills per day I already take for other things. No food for 2 hours before and 1 hour after.
Another blood draw 30 minutes after taking the pills. Another blood draw and 3 more EKGs at the 1, 2, 4, 6, and 8 hour marks.
No comments:
Post a Comment