Today marks 4 months since the day that changed everything. It also marks the beginning of Round 6 of Chemo. In honor of these milestones, today is also the day that I have decided to go "public" with my diagnosis. For 4 months, I have been keeping this blog but not sharing it with anyone. I've been avoiding posting anything about my endless doctors appointments or photos of me without my wig on facebook. So, I figured it was time to stop "hiding".
I also plan to share things about Neuroendocrine Cancer to raise awareness of NET. It is a rare form of cancer, and most people who I talk to and have told them that is what I have, will say they have never heard of it. NET awareness day is coming up on November 10!
On to the updates. Things have been pretty rough since my last post. I am not sure if it was because I was fighting an illness on top of it, or if things just get rougher as time goes on, but round 5 was ROUGH. The fatigue did not start to clear up until day 12, and even yesterday (technically day 22 since my doctor asked me not to come in until Tuesday) was full of naps.
I am anxious to go in for round 6 today for many reasons. First, I am nervous about the side effects and how long they will last. As I said, last round was rough and I feel like I just barely started to feel better, now I have to go back again. I am also anxious and impatient to get new scans. I wish there was an easy way to get real time updates on the status of my tumors and how they are reacting to the treatment, but unfortunately there isn't.
Thanks for reading!
I'm so glad you have decided to share your journey.
ReplyDeleteI still remember the day you gave us the news. I was in shock and disbelief.
A couple days later, when it really sunk in, I could not stop crying. No matter where I was or what I was doing, I would randomly start crying.
I'm not a "religious" person per say, but I started praying every day, several times a day for God to heal you of this horrible disease.
When you gave me the news of your first scans after your sets of treatments, I was so excited for you!
I still pray daily for complete healing!
I love you from the bottom of my heart!
��Mom
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DeleteMy Dear Friend,
ReplyDeleteI wish that I could just wrap my arms around you and take away all of your pain and worry. It is wonderful that you have found such an amazing partner to be with you through all of this and I know you will be able to conquer anything together! You are making a brave choice to share your journey. After taking the time you needed to come to terms and straighten your thoughts, you have made the choice to acknowledge that these terrible illnesses do exist and that the only way to learn more about them, raise awareness about them, and one day beat them is to speak up about them and share your experiences. You are amazing and I love you. >>>HUGS<<<